Convoy for Kids Goulburn Inc. : Logo
Our Patron

 

HOME

ABOUT US

CASE HISTORY

CONVOY 2003

SHOP

I HAVE A SICK CHILD

 

WELCOME TO THE OFFICIAL WEBSITE OF
CONVOY FOR KIDS GOULBURN Inc.
SUPPORTING OUR LOCAL KIDS WITH CANCER/SEVERE DISABILITIES
Case History : Hannah
Hannah

OUR BEAUTIFUL DAUGHTER & SISTER HANNAH LEE
 Hannah Lee Mckellar was born on the 27th of April 2003. She was delivered at 38 weeks by C- Section and had a recorded apgar of 9 after 1 minute, then 10 after 5 minutes. Han weighed 3595gms and her length was 48.5cms. Things were all sounding pretty positive at this stage.
Two days after Hannah was born it was decided that she wasn’t feeding well, she couldn’t maintain her body temperature and required oxygen. She had clasped thumbs and was also hyper tonic. The doctor said it was best if Hannah was transferred to Canberra Neo-natal ward. At this point, we thought what the hell is going on? Well, this was just the beginning of a very long period of unanswered questions.
A few months went by and our beautiful Hannah was showing no signs of any development. I had another child, Bree, 9yrs older than Han, so I had a little idea of what should be happening.
After many tears and much persistence, we had Hannah assessed by a developmental pediatrician. At 7 months old Hannah was diagnosed with severe cerebral palsy. We were told she would never walk and that she was going to be a highly disabled girl for her entire life. I wish I could describe how I felt at that moment, but I don’t know how. All I know is that I would ever wish it on any person ever.
Since that day we have also discovered that Hannah is profoundly blind and she has maximum to severe loss in her left ear. She suffers from reflux and all her fluid must be thickened as thin fluid goes directly into her lungs. She also has a lot of trouble with her bowels.
Although the last few years have been incredibly hectic, exhausting and frustrating, I wouldn’t give it up for anything. I have seen little progressions in Hannah that we didn’t think would ever happen and it makes us the happiest people in the world just to see her smile, because we didn’t even think that would be possible. I guess you begin to look at life a lot differently when you have a special child like Hannah. I don’t regret any part of it and am looking forward to some more challenges with our girl.
We are very fortunate to have a lot of local support and I don’t know how we would have managed without it all. Not only family and friends or the services for Han’s development, but also the financial assistance. Convoy for Kids have played a great roll in this. They have provided us with fuel cards for our ongoing trips to Canberra and Sydney for medical appointments and also assisted with accommodation costs when we need to make it an over night trip. Convoy has also contributed to Hannah’s equipment pool. We are truly grateful for their ongoing support.
This is definitely a life experience and the best advice that I would give to someone in this situation is to give your special child a lot of love, because I believe this is what has helped Hannah along the way and I feel extremely privileged, proud and honored to be apart of this little girls life.
Case History : Hunter

Convoy For Kids Goulburn Inc. Helping Hunter

Hunter was born on the 24th February, 2003.

Three weeks after being born, Hunter developed seizures and was diagnosed as suffering from Infantile Spasms and Epilepsy.

Hunter was airlifted from Canberra Hospital to Randwick Children's Hospital in Sydney where he spent a number of months while Doctors attempted to control his seizures with medication.

Unfortunately this was unsuccessful and he suffers from a number of seizures daily.

Hunter now suffers from Major Development delays and uncontrollable seizures. Hunter has recently been diagnosed with abnormal brain activity which is not related to epilepsy. Hunter also has irreparable eye damage resulting in blindness.

Hunter now requires 24 hour care and his mother has been forced to give up her full time employment to provide this care. Hunters father has continued his full time employment with the NSW Police force.

To assist Hunter in his all round development, local agencies spend several days per week providing Muscular and Stimulation Therapy to help his development.

Along with the support of these agencies, Hunter's parents are also providing the equipment and toys needed for his progression. This included a hydro-therapy spa which is used to stimulate Hunter's muscle tone as they are not developing.

It is anticipated that Hunter will require on-going medical and therapeutic treatment for many years to come.

 
 
• HOME • ABOUT US • HISTORY OF C4K GOULBURN • CONVOY FOR KIDS ORIGINS •
• I WOULD LIKE TO JOIN/DONATE/SPONSOR • SHOP • CONTACT US •
• I HAVE A SICK CHILD - WHAT SHOULD I DO? •